26
How do you do it? (programming.dev)

How not just give up? There is nothing left, no viable career options, hobbies are pointless because there's just no improvement past certain point anyway, no alleviation to the fucking constant hurt that's AuDHD. And nobody gets it, nobody.

Any insight, other than "seek help", would be welcome right about now.

top 17 comments
sorted by: hot top controversial new old
[-] rowinxavier@lemmy.world 6 points 2 days ago

One thing to consider is having a reason to live. Find something you care about or are interested in an leverage that interest.

Think of it like a car. Making explosions doesn't actually do anything for us in terms of getting somewhere, so we have to make a complex machine to turn that force into motion. I have an interest in electronics, so making electronic things to, for example, weigh my washing basket to tell me when to put on a load will turn some of that interest into activity.

As for nobody getting it, my partner does. They are my rock and they need me, so double win there. When I am having overwhelm they don't judge or condemn, they actually understand and help me find my calm and get things sorted. It took a lot of luck to find my partner and years of working together to be functional but now we are like an engine and a gearbox. They help me convert my efforts into useful stuff. They also help me know when to take a break and rest. Maybe something similar can exist for you?

[-] possiblylinux127@lemmy.zip 3 points 1 day ago

You really need to take a step back if you are looking for reasons to live. Life is valuable and just being here enough reason to stay alive. You are valued even if you don't think you are.

[-] sentient_loom@sh.itjust.works 27 points 2 days ago

hobbies are pointless because there’s just no improvement past certain point anyway

This is false for two reasons. One, "hobbies" aren't just for improvement. They're for fun, to express yourself and make something you find valuable. And two, there is improvement if you tackle increasing challenges.

I guess I'm lucky because I'm obsessed with my personal projects. They give my life structure. I'm not getting any interviews, not making any money, but I'm motivated every day by the ambitious projects I work on.

[-] garbageMaster@programming.dev 2 points 2 days ago

They’re for fun, to express yourself and make something you find valuable

That would be optimal, sure. The reality is, I'll have good run learning something new, and at a certain level, just become so frustrated and burnt out, it'll lose it's appeal completely. Might return to it after years, only to repeat the cycle.

[-] possiblylinux127@lemmy.zip 6 points 2 days ago

When a Autistic person gets burn out is it common for hobbies to start to seem useless.

[-] fuckwit_mcbumcrumble@lemmy.dbzer0.com 9 points 2 days ago* (last edited 2 days ago)

When a ~~Autistic~~ person gets burn out is it common for hobbies to start to seem useless.

It's not even really unique to Autistic people. Anyone who's burnt out/depressed will feel that way.

[-] MelodiousFunk@slrpnk.net 7 points 2 days ago* (last edited 2 days ago)

Right, just turned up to 11.

Edit to expand: One of the hallmark traits of autism is one or more Special Interests. Yes, everyone has those too. Autism turns them up to 11. They are often an integral part of one's routines. And/or an escape from them, especially when ADHD is added to the mix. If not tied up in one's identity in addition.

When depression gets bad enough to derail Special Interests, it can be devastating. It's not just run of the mill anhedonia. It's a removal of an entire support structure. One or more pieces of you are just... gone. All the stuff related to the Special Interest is still there (possibly even being surrounded by it), but none of the engagement. Just constant reminders of the parts of you that broke.

Autistic burnout is a whole other can of worms. It goes over and above the colloquial meaning of burnout. A vacation won't help. A job change won't help. It goes deeper than any of that. Again, turned up to 11.

Once these things start piling up, it's very difficult to do anything. To OP, I agree: nobody gets it. We exist in our own personal hells, and if we try to talk about it people will re-orient what we say into their own framework and start making false equivalencies. "Just do X." It can be a good-natured attempt to understand, or a dismissive invalidation. Either way it gets exhausting.

OP, I don't have any answers. I don't know what the point is. If it wasn't for my spouse I doubt I'd be here. I don't fit. 40+ years of trying to be a square peg, scrambling to fill in all the corners on demand, has me drained. Nothing I do has ever been enough. I'm tired.

I wish you the best. Truly.

[-] garbageMaster@programming.dev 4 points 2 days ago

It’s not just run of the mill anhedonia. It’s a removal of an entire support structure.

You nailed it. Now, with half a life-time of trauma, masking and dead-end jobs, it seems there's no getting those interests back.

if we try to talk about it people will re-orient what we say into their own framework and start making false equivalencies. “Just do X.” It can be a good-natured attempt to understand, or a dismissive invalidation. Either way it gets exhausting.

This right here. So tired of trying to talk to anyone not on the spectrum about it anymore.

If it wasn’t for my spouse I doubt I’d be here. I don’t fit. 40+ years of trying to be a square peg, scrambling to fill in all the corners on demand, has me drained. Nothing I do has ever been enough. I’m tired.

Yeah, hanging on not to dissappoint loved ones, is how I'd put it. Feels all kinds of wrong.

I wish you the best. Truly.

Thanks, to you too.

[-] AutumnReaper@lemmy.world 6 points 2 days ago* (last edited 2 days ago)

Im in the same spot that you're in, but one month into actually trying to change my situation with employment, therapist, psychiatrist, and have scheduled a neruo psych exam for early this year so that I can get access to ADHD meds.

TLDR in separate comment as a reply to this one

(Ill deceide what i want to try after i get the results. I have adhd and probably high masking autism. My older brother has the official diagnosis and my dad displays the same symptoms that I do, so statistically I probably have the 'tism)

Ive been working on my mental self for over 4 years at this point with the perspective of having ADHD. I self discovered the autism late summer 2024 and have been working on acquiring traits/skills with that perspective for the past month to support the audhd.

Main skill ive discovered is to listen my body's subtle signs when and why im internally screaming and having a mini melt down. I check in with myself by asking the question 'would I feel happier if I could go to the car to scream over whatever I'm freaking out about?'

A trigger for a check in is mild tingles of discomfort or when my brain feels whelmed by my surroundings. This takes time and I'm on year 3 or 4 working on this skill. I treat the skill as a hobby and celebrate each time I notice.

Identify the situation, what's the root cause of stopping me and what's some options to thinking over time that will help? Thinking of solutions to the barrier of entry is the first step to doing an action. Just gotta break it down until it's digestible for my own self.

Am I frustrated that I can't do something perfectly/will doing something perfectly over good enough with a place holder until I get pissed off again enough to deal with that specific mini task at a later time if ever?

What's blocking my road? My brain or the task itself? Can I adhd set myself up for success for completion of the task at a different time? Take advantage of the structure you crave to figure out what is missing that would help you.

You gotta create your own dopamine with a quick 'whoo hooo! fist pump' since your brain can't as a reward. It feels dumb, but you're practicing the traits of a happy person and eventually you'll look for the small things in life to celebrate 🥳 for that quick dopamine boost. It's fun honestly plus trait acquiring can become a special interest/hobby.

Goal is to ease the barrier to start (and celebrate starting) instead of making the effort to even start too emotionally draining. And identify the self-guilt (that's been bred from an unfriendly society about performing correctly perfectly 100% of the time) that has impeded my ability to actually address my needs to achieve sustainable success for myself.

Career wise, see if you can try to land a job somewhere quite that doesn't require a whole lot of socializing. To statisfy the 'tism, your job should provide the structure in your life that you will crave. To satisfy the ADHD, you can do whatever you want during the day and change what you need to do on the fly. There's controlled chaos in doing errands early in the morning after work on the way back to cut down on how often you gotta leave the house, or after you wake up from the deep sleep. Invest in an eye mask (i can recommend one if ya want) and make sure to get an hour or two nap in before work. ADHD allows us to take advantage of falling asleep anytime anywhere and if that fails, there's always the devils lettuce. Just don't do it too often if possible because it does impact your brain's ability to reset while sleeping and the quality of rest. You get to decide if your free time is in the morning or evening and can switch it up for spontaneous excitement for the chaos we crave.

Example is being a night/morning shift at a hotel as a receptionist. That's what I did and its been amazing for my mental health. I've done more with engaging in my hobbies in the past month since I started my new job than the past 2-4 years due to being in survival mode all the time from work.

Another example is to work overnight at a hospital patient sitting. You can practice quite hobbies or even pick up quiet hobbies from the thrift store . This will feed the adhd that craves spontaneously and creatively.

Last resort is hit the random article link on Wikipedia, you'll have endless opportunities you learn. You could pick up books to read from your local library, coloring books, pick up knitting/crochet, plan a rough draft for anything your special interest is atm.

For context of where I come from; I was a barista that had to talk all the time because I was so good at interacting with customers on an 'authentic' level. I was so burnt out because I was trying to do school at the time too before I had to take a break. Too much over stimulation throughout all parts of my day that lead to me having major burnout/internal meltdown and eventually resorted to a bit of self-harm. Something had to give and it was me.

Also I learned about Rejection Disphoria Syndrome that is common in ADHD. Basically any and all perceived rejection/criticism/negatively feels like it cuts to my soul and is physically painful. Like I feel my chest hurt with mental pain when I interpret rejection. I couldn't understand how allisitics could function when they were going through this pain too. Surprise, they don't. They don't feel it anywhere on the same level and don't get retraumatized with every rejection.

Now imagine that with ASD and not realizing when you make a social blunder until someone points it out. That pointing it out is perceived as rejection, gets internalized, and becomes part of our self concept because with ASD, we can't conceive a self concept the same way that Allisitics do. Our self image is from feed back from others and most feed back with the way society is structured is negative due to our inability to fit in without changing and learning to mask. (This is where a therapist is super helpful for audhd with RSD because they can provide us with the positive feedback to restructure our self image and expectations).

Finally, look for hobbies that aren't about improvement, but are rewarding in the end product and stimulate your brain like a puzzle in trying to challenge perceived limitations. Inspiration can come from anytime you wish that you were into that thing because this person is so cool for being into it. Become cool yourself by picking up the hobby 😎

Finally, a hobby is a hobby as long as you engage with it once a year. I have the skill to crochet, and my main hobby is to collet yarn, pdf's for future projects, and fantasizing about my projects. This is all prep for when that adhd motivation boost happens, but are all vaild parts of the same hobby.

[-] AutumnReaper@lemmy.world 5 points 2 days ago

TLDR; You gotta feed both the stability that ASD craves and the chaos that ADHD craves. Seek employment that fulfills the ASD needs and stability that isn't too much on your body that it seeps out into your personal life. Seek a personal life that fulfills the ADHD cravings and find physical reminders that occur that could trigger self improvement behavior. Let chaos dictate when you sleep, but structure in how you get ready for bed.

Find balance in all aspects of living life of chaos vs structure and learn/practice the skill to recognize which one is needed, when, and the skill to swap between the two

[-] garbageMaster@programming.dev 2 points 2 days ago

Seek employment that fulfills the ASD needs and stability that isn’t too much on your body that it seeps out into your personal life.

Been wondering all my life what that employment could look like. I just come up with absolutely nothing. If I lived a century or two earlier, I'd be a craftsman and perfectly happy with it. Today, there's few such opportunities, you only become one with luck and/or wealth. There seems to only exist too monotonous or too exhausting employment and starting a business is too uncertain for a worrier.

[-] Appoxo@lemmy.dbzer0.com 2 points 1 day ago

If you would say the sentence "There is no apprenticeship available" you'd probably get lynched by the trades people.
They have so many problems getting new apprenticeships filled you wouldnt believe it.
The problem: Compared to the industrial peers (e.g. IT-apprentices) you will probably probably 25-50% less net income for more work and your job has a higher bodily effect (could mean you'd need to retire earlier)

[-] AutumnReaper@lemmy.world 1 points 2 days ago* (last edited 2 days ago)

TLDR; You gotta feed both the stability that ASD craves and the chaos that ADHD craves. Seek employment that fulfills the ASD needs and stability that isn't too much on your body that it seeps out into your personal life. Seek a personal life that fulfills the ADHD cravings and find physical reminders that occur that could trigger self improvement behavior. Let chaos dictate when you sleep, but structure in how you get ready for bed.

Find balance in all aspects of living life of chaos vs structure and learn/practice the skill to recognize which one is needed, when, and the skill to swap between the two

[-] possiblylinux127@lemmy.zip 11 points 2 days ago

Get a good nights sleep and allow yourself to have downtime.

Remember that with Audhd there are two wolves. The ADHD side wants excitement and to do new things. The autism wants routine, control and low stimulation. You need to appease both.

[-] i_dont_want_to 9 points 2 days ago

Hello, it is me with burnout. It's hard to keep up with everything. But I think I have been in a similar place.

What do you mean no career prospects? I'm the type of autistic that misses social queues but is really good at systemizing, so I'm a great person at making sure stuff "behind the scenes" gets done. (Sure, I talk to other team members but I make minimal appearances to clients.) Do you have any ideas as to how your strengths can work well in a role?

And for hobbies, that's my shit right there. I don't have to be good at it, I just have to like it. That's the point imo. To be fair, it is sometimes hard to get into a hobby of mine because I don't have to focus on doing it at the time. Or I might want to "step it up" but my ADHD makes it difficult to follow through.

It's constant hurt if you're in a place where you don't fit in. Believe me, I know. We can't change the world overnight, but is there something you can focus on that you can change? Can you streamline something in your own home to be less hostile to your brain, like putting up curtains or organizing your clothes so getting dressed in the morning is easier? Can you make any decisions on how you interact with the world outside of your home that will make things easier?

I try to even play my own strengths to defeat my weaknesses. My ADHD makes it hard for me to get started on a task. It also makes it hard to stay on the task if I hit a snag. What helps is structure... Which I am great at giving myself because of autism. My bathroom is really well organized, so I am on top of making sure I never run out of anything and it's easy to find anything I need (because it all has a place).

I would also give yourself some breaks. Even just a small break will help your brain out so so much.

Lastly, this growth will take time. It's ok to make mistakes. It's ok to need some time to learn and perfect something. It's ok to need to take a break.

[-] garbageMaster@programming.dev 3 points 2 days ago

What do you mean no career prospects?

I went through school under-achieving due to hostile environments and lack of support. Masking half a life-time left me traumatized and chronically tired. I can't fathom how anyone with these cards can muster up the will and courage to put the mask back on to have an edge at the job-market. Even the thought of a job interview paralyzes me.

It’s constant hurt if you’re in a place where you don’t fit in.

I have no idea where such a magical land would be, where a burnt out, under-achieving AuDHD person would fit it.

Can you make any decisions on how you interact with the world outside of your home that will make things easier?

Due to decades of nearly 100% negative interactions, I've almost completely isolated myself. I know it's not good, but just don't see how to interact without submitting myself to more harrassment and misunderstandings.

What helps is structure…

Yeah, I've found ways to get things done, just the motivation and reward is completely lost at this point.

[-] i_dont_want_to 1 points 1 day ago

For career, I was very burnt out when I was trying to get a new job. My job was pretty hostile to me to the point it was a good day if I only cried twice. I know I definitely bombed some interviews hard. But after some practice, interviewing got easier and I did get a better job. Is this something you think you can achieve? (I do not know the specifics of your career path. I hear there are niche ones where everyone knows each other and this may not be advisable, but I can't speak to that.)

I feel like you might be taking an "all or nothing" approach. You don't need to fix EVERYTHING all at once. It's a process. You might only be able to fix one thing in a month or two. It's not failing to move at that pace. But just keep improving little by little.

The point of me telling you to fix the environment that you can change was to help alleviate some of the burnout. If you can make at least one low stress place for yourself, you have a better chance of recovering from burnout. If you alleviate the burnout, you will be able to function better. Interactions with the outside world will be easier. (And being able to deal with negative interactions.) You might even find "your people" that you actually like hanging out with on occasion.

When I miss cues or I do something that frustrates someone, I apologize and try to do better... But also I don't beat myself up over it. Do you beat yourself up over these types of things? If you do, practice different ways you can let it go. It won't be instant and it will take time to build that skill, but it is essential.

Do you have any way you can practice interacting with people? It can be as small as going to the store and going to a checkout lane with a cashier. If you mess something up... Remember it's no biggie. The cashier deals with all sorts of people and won't remember your mistake by the end of their shift.

I recommend the book What to Say Next: Successful Communication in Work, Life, and Love by Larry Nannery and Sarah Nannery. It was a huge help for me to understand the purpose of certain types of communication like small talk. It also made me feel so seen and not like some sort of crazy alien trying to integrate with the humans.

I definitely understand that feeling of feeling no joy, reward, etc. from doing something. It might be easier to focus on something visual. If you got a bit of a depression nest going on (no judgement), doing something as small as getting a trash bag and throwing away any trash you see for 10 minutes might be a boost. Or just give yourself like a day of doing nothing if that's possible. Everyone needs a break, and it sounds like it would help calm your mind and help with your feelings of overwhelm.

this post was submitted on 06 Jan 2025
26 points (100.0% liked)

AuDHD

1494 readers
1 users here now

A place for those that got both Autism and ADHD, those confirmed as one and are suspecting they got the other as well, and also everyone who is neither and just genuinely curious.

Since the combo comes with its own set of challenges, this shall be a place to ask for advice, vent, infodump about special interests and/or just vibe and meme.

Please be respectful. General niceness guidelines apply - formal rules will be added later if necessary.

In regards to medication and medical advice: Please take under consideration that this is only an online support community. Offered advice is always an expression of individual opinions or experiences and shall never be taken as substitute for a professional in-person assessment!

This is a SFW community. Sensitive topics are allowed, but must be properly labeled.

More support communities:

On lemmy.world

c/Autism


founded 2 years ago
MODERATORS