Yep I sure do look normal! Would be nice if I had more energy than negative five. Oh? You have energy waking up so I'm lying about how sleep doesn't refresh? Thanks! Yeah my doctor knows and is baffled but my insurance only covers so many tests! Guess I'm just exhausted until I die! Oh I'm still doing stuff? I HAVE TO TO EXIST.
Oh I feel you. Until I was diagnosed with sleep apnoea and put on Cpap my life was a hellscape of brain fog and exhaustion.
As far as we can tell, not enough sleep apnea to qualify for a machine (well, insurance won't)
So I get to clean a cpap every morning for my husband but not use one! Ah well.
It's not cheap, like $1,000 plus periodic supplies but you can buy your own cpap. What I don't know is how you can get it calibrated to your needs without seeing a sleep specialist.
Broke as fuck so that's a no go. We can only do it if the insurance agrees. They agreed with husband because he was very very bad. I'm within normal human operating standards though so no go.
This reminds me I should probably clean my cpap way more than I do...
You're supposed to clean it? ๐
I clean it every morning because it's just easier to do. Hose is one a week, checking filters and everything once a month. I found unscented dish soap and a toothbrush to scrub it all with. Fuck distilled water though, but the hard water is why I scrub every day.
Noted on cleaning frequency, I need to get better about it, esp the mask itself. Why fuck distilled water if you dont mind me asking? I use distilled water from Krogers and its been totally fine.
I pay for water from the city, and by the gods, I'll use it!
More seriously, the distilled water needs to be purchased, brought inside, used, only for a lot to be wasted (since the machine never gets to dry out, he doesn't sleep long enough) and since I am cleaning it every day, it doesn't build up enough to be an issue.
Depression here and I really wish people would stop confusing it with sadness, I'm not fucking sad, I barely feel anything.
Ugh YES. I just feel flat and empty when depression hits.
I'm physically disabled with minor mobility issues. If I say I can do it, I can. If I say I can't, I can't. It's that simple.
I'm (partially) blind and (partially) deaf. People seem to think you can either see and hear, or you can't. The fact that I often can't hear or see something just seems to annoy people.
How normal I am, or can seem, or can even out perform you. The nuances of a lack of sleep are the real cause of my disability, and no drugs work to change that after a broken neck and back. There is nothing simple or binary about disability, like how the mind of a child views the subject, regardless of the person's age.
I know people legitimately think they're helping when they do this but I feel like most people need to learn to keep their mouth shut when they encounter someone with a chronic illness. It's gotten a lot worse in recent years, but it's been an issue my whole life of people saying my rheumatoid arthritis will be cured if I follow some fad diet or buy some scammy product. These days it's essential oils that are supposed to "help" and everyone has some distant relative or friend of a friend who it supposedly worked for. I don't even tell people I have anything wrong with me because most people wouldn't even know otherwise and I don't have to listen to them try to sell me on bullshit or feel pity for me.
For starters, it would explain why I talk the way I do, why I talk like other people like me, and why I cling to the things I cling to.
Rules