The Cost of ME/CFS: An OT’s Lived Experience (batemanhornecenter.org)

submitted 1 year ago by xuxxun@beehaw.org to c/disability@beehaw.org

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A very educational post about a ME/CFS /Long Covid experience from the perspective of a person with an occupational/physical therapy background.

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[-] holoyolo@partizle.com 3 points 1 year ago

This is why I'm too scared to see a physiotherapist or an occupational therapist, even when they advertise that they deal with chronic fatigue etc. I'm seeing that their work revolves around doing things, but that's what's making my symptoms and health worse.

It's depressing having to explain to every health professional that the literal journey to attend their appointment is easily too much and affecting my health, even if it involves a short walk. If getting there and back is an issue, how is doing whatever they're recommending in addition likely to help?

[-] xuxxun@beehaw.org 2 points 1 year ago

Yeah... The treatment is supposed to be helpful, not harmful. It is indeed quite distressing to see lack of knowledge and close mindedness from medical proffessionals. On a tangential note: With the dropping of mask mandates in medical settings I am scared to go for my physiotherapy too, I do not want the doctors to give my long covid long covid. "Do no harm" their oath says. Right.

this post was submitted on 12 Jun 2023

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