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How do folks here handle the feeling that they're just waiting, not serving a purpose, and being a burden on their family as well. (lemmy.dbzer0.com)
submitted 1 month ago* (last edited 1 month ago) by Melatonin@lemmy.dbzer0.com to c/chronicillness@lemmy.world
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I wake up, I eat, I read a little, I go back to sleep. I wake up, I eat, I read a little, watch a show with my wife, go back to sleep. I try not to eat more than 1500 calories because my activity level is so low I'll get fat if I go above that.

What's the end game here?

EDIT, FOR CLARITY:

I can't work. I need to sleep like 14 hours a day. I'm exhausted all the time. I get fatigued after about 5 to 10 minutes worth of any labor, including things like going upstairs or loading a dishwasher. My hands shake all the time, to where I can almost not clip my own fingernails anymore.

I work a job for years and retired from it there's plenty of money coming in. I just find myself in a place now where this chronic, undefined illness has taken over my life.

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[-] Olgratin_Magmatoe@lemmy.world 3 points 2 weeks ago

My girlfriend and I are in a similar boat, but she is the one that is chronically ill. So I can say from the caregiver's side of things, it isn't a problem. I'm happy to help make sure my girlfriend is able to get through the day, and I don't see her as a burden.

I'm sure you've already talked to your wife about it, but if you haven't you absolutely should. There is no guarantee that they see you as a burden.

I hope the feelings you're experiencing get better.

[-] Melatonin@lemmy.dbzer0.com 2 points 2 weeks ago

We do talk a lot and she, like you, is a caring partner who loves me and doesn't see me as a burden. She is also transparent about how hard it is at times. It's strange to comfort her over something that is caused by a problem I have.

So much conflicting emotion.

this post was submitted on 30 Sep 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

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