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submitted 3 days ago* (last edited 2 days ago) by otter@lemmy.ca to c/microblogmemes@lemmy.world

There are downsides with downloading their app just to input bad data, but it's a fun thought.


edit: While we're at it we might as well offer an alternative app to people.

I posted in !opensource@programming.dev to collect recommendations for better apps

The post: https://lemmy.ca/post/32877620

Leading Recommendation from the comments

The leading recommendation seems to be Drip (bloodyhealth.gitlab.io)

Summarizing what people shared:

  • accessible: it is on F-droid, Google Play, & iOS App Store
  • does not allow any third-party tracking
  • the project got support from "PrototypeFund & Germany's Federal Ministry of Education and Research, the Superrr Lab and Mozilla"
  • Listed features:
    • "Your data, your choice: Everything you enter stays on your device"
    • "Not another cute, pink app: drip is designed with gender inclusivity in mind."
    • "Your body is not a black box: drip is transparent in its calculations and encourages you to think for yourself."
    • "Track what you like: Just your period, or detect your fertility using the symptothermal method."

Their Mastodon: https://mastodon.social/@dripapp

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[-] Agent641@lemmy.world 3 points 1 day ago

Fellas, fellas! I'm preggers! 🥳

I fear it might not last the weekend tho.

[-] garbagebagel@lemmy.world 3 points 1 day ago

Will it work if I do this from Canada? I haven't had a period in over 4 years (help, I've been pregnant for 4 years!) But I want to help y'all too!

[-] MeaanBeaan@lemmy.world 21 points 2 days ago

Why in the world do we even need apps for this stuff? There is no reason to give your data to these companies at all.

Here's a crazy thought: get a journal. And write in it.

[-] MountingSuspicion@reddthat.com 17 points 1 day ago

I don't know if you're someone who's not had to deal with menstrual cycles, but that's not really helpful advice. Apps provide a lot of useful information and often integrate with other health data to offer better predictions and general insights. Many cycles are not "oh, it's the 15th, here we go". Many can be affected or predicted by mood/diet/symptoms. That's a lot for a person to keep track of. My app will sometimes predict up to a 3 day shift and be completely accurate. I have looked at the graphs and sometimes you can point to a specific symptom and say, oh that must be what it used for that prediction, but sometimes you can't. Get stressed every year around the holidays to the point where it changes your cycle? Your app will remember that. One less thing for your stressed mind to worry about. Additionally, even if they were super regular to the day, having an app to send a reminder, "hey! Get ready tomorrow" can be helpful to make sure you have any supplies you may need.

Also, we use apps for things we don't need to all the time. And generally, it's for the same reason: apps are easier and more accessible. Since you mentioned a journal, there are plenty of apps out there that replace journals themselves. They are used for several reasons, but one would imagine using an app is easier because it's not an extra item you have to have on you and can potentially lose or forget to bring, it's always on you so the resistance barrier is smaller, it might even have search functionality.

Do I think people should be randomly downloading these apps? No, it really doesn't do anything at all. But blaming people for using conveniences because the government is trying to take away their rights is really missing the mark. It might be good opsec, but it's dismissive at the least and not really solving the actual problem.

[-] Whirling_Ashandarei@lemmy.world 3 points 1 day ago* (last edited 1 day ago)

What a goddamn comment. Informative, thoughtful, and an amazing rebuttal without being condescending. Is best of a thing on here?

[-] MountingSuspicion@reddthat.com 2 points 1 day ago

Provided I'm not missing sarcasm here, that's nice of you to say, but honestly I certainly hope it wouldn't be relevant in a best of. Lemmy is full of really helpful people in niche communities sharing their expertise, so I'd hope explaining why people use apps would be seen as out of place in a best of lol. Thank you regardless.

[-] Whirling_Ashandarei@lemmy.world 2 points 18 hours ago

Not sarcasm!

[-] Shardikprime@lemmy.world 9 points 2 days ago

The absolute madlad

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[-] LovableSidekick@lemmy.world 2 points 1 day ago

Menstrual cycles are so last millennium, I was told there would be menstrual hovercraft by now.

[-] Grandwolf319@sh.itjust.works 49 points 2 days ago

I don’t want to victim blame but if using an app is optional and it could get you in trouble with the law (regardless of how bad the law is), you should not use it.

Having said that, as a dev, please pollute data as much as possible.

Management needs to learn how valuable good data is and good data comes with proper consent (most people wouldn’t share their data if they could opt out).

[-] MountingSuspicion@reddthat.com 2 points 1 day ago

Legit only comment so far to not just say "PAPER EXISTS1!1!1!1!" So props for that.

Can I ask how polluting the data will help? Most apps that don't care about privacy can probably identify people with zero issues. I bet people are giving these apps location data etc.

I don't know what you mean by good data comes with proper consent. Like, ideally all data was offered with proper consent, but how does that make data better or worse? If anything, data given without consent is likely to be more wholistic/unedited since they were not given time to redact/remove info. If someone stole my phone and took all my data, they would have "better data" than had I been informed this would happen and given time to wipe my phone.

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[-] andros_rex@lemmy.world 23 points 2 days ago

These apps are very helpful for people who have irregular cycles or who are family planning. I relied heavily on a similar app in high school, because my monthlies weren’t monthly. I was able to share that data with my doctors to help better understand my body.

This really indicates a need for self-hosted solutions.

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[-] Frostbeard@lemmy.world 3 points 1 day ago* (last edited 1 day ago)

I am doing my part. Don't really know what I am doing, just happy to br a part of it.

Edit. Is this normal? Just presse at random

[-] cashew@lemmy.world 8 points 1 day ago

I think this app is a poop tracker. Tick the days your poops take an extra flush, and then also the days you get a clean release. That should help you track your bowel movements effectively. You're welcome.

[-] LovableSidekick@lemmy.world 4 points 1 day ago

I use mine entirely differently. Now that we're into November it's been quiet.

[-] andros_rex@lemmy.world 4 points 1 day ago* (last edited 1 day ago)

I think it would be easy for them to filter extremely atypical period patterns - usually you aren’t go to have a one day period. In between spotting is something you talk to a doctor about. Two a month would be awful.

Realistically, think about 4-7 days. Regular cycles, one a month. Usually about the same amount of time between each. To really fake the data, log intensity. Starts with spotting, usually intensifies in the middle, then slows down again. (To be really extra, log some clots lol)

The best way to help would be to pollute the data set with as many fake pregnancies as possible. Log regularly, take a break for about three months, then log another to simulation an abortion or miscarriage.

[-] AI_toothbrush@lemmy.zip 3 points 1 day ago

Oil moment /s

[-] 0laura@lemmy.dbzer0.com 167 points 3 days ago* (last edited 3 days ago)

it's quite silly imo. unlikely to accomplish much or anything at all. teaching people about free software like drip is way more likely to actually help people. it's free, open source, and completely local.

edit: they even have a mastodon!

[-] Venator@lemmy.nz 56 points 3 days ago* (last edited 3 days ago)

Not to mention that downloading that flow app will help them boost thier numbers, I doubt they'd care if men are using it as long as they can sell the data...

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[-] dditty@lemm.ee 162 points 3 days ago

So I just installed this right now after seeing this, and man this app has a lengthy initial startup process with dark patterns and everything. Now apparently I'm ovulating in two days. 🤭

[-] OldManBOMBIN@lemmy.world 85 points 3 days ago

I'm going to learn how to orgasm!

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[-] zephorah@lemm.ee 43 points 3 days ago

You would think it wouldn’t be this easy, but given the incredible disconnect from reality on reporting late term abortion statistics, this could scramble data.

For those who don’t know, the raw statistic of late term abortions comes down to late term terminations via a procedure used in pre 20week months to end a pregnancy. There’s little difference in logging the data. Babies can die inside, even as you’re trying to attend your own baby shower, like with that young girl who recently tried to get help from 3 Texas emergency rooms, but instead died due to the late term corpse rotting in her uterus.

The procedure used to expel a stillbirth in the late term is an abortion. That is what pregnancy termination by procedure is: abortion. But the context of corpse removal is lost on political alarmists who don’t bother to do their own research on how/when the procedure is used in late term pregnancy, in favor of uneducated hysteria and the demonizing of women.

My point is, given how resolutely people have not delved into the context of this data regarding stillbirths, messing with menstrual trackers can and probably will work, provided you don’t limit yourself to Flo.

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[-] pH3ra@lemmy.ml 20 points 2 days ago

Calling an app that tracks menstrual cycle "Drip" is peak comedy

[-] Sterile_Technique@lemmy.world 99 points 3 days ago

So I fucking hate that this is where my brain went, but my kneejerk reaction to this was: "If I do this, could it be used as evidence to charge my wife with the death of a nonexistent fetus?"

I live in the cousin-fuckingly-deep south where women are incubators and a long list of stereotypes. I could definitely see it argued in court - successfully - that an app like that was only used on my phone to try to conceal my wife's data, and the data points to one of the ways we've criminalized pregnancy.

...and that's thinking about what could happen here and now. Once Trump has had his way with our country, we'd probably just get deported to one of daddy Putin's gulags or some shit.

I really fucking hate it here.

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[-] AusatKeyboardPremi@lemmy.world 10 points 2 days ago

Why are such apps popular? Do these offer something more than what a combination of reminders and notes (digital or analog) providr?

Perhaps, these apps offer some insights based on the data. But would one take the risk of listening to an app for medical advice?

[-] MountingSuspicion@reddthat.com 16 points 1 day ago

Hi! Lots of people in this comment section who clearly don't have periods, but yea they do offer something more. That's why they're used. It really feels like a bunch of presumably men are here in the comments to remind women that paper exists? Yea, we know. Other than these all being easily searchable questions, allow me to say we use them for many reasons including: Convenience - you almost always have your phone on hand. Do you really want to keep a dedicated period journal on your person at all times? Predictions - despite what you may believe, periods are not all regular. Some can skip months at a time. Most apps have a bunch of data sets they use to predict things even if your data isn't complete Integrations - does my journal automatically cross reference my symptoms and alert me that it noticed that eating apples makes my headaches worse? No, and the level of analysis being done would need both an inhuman amount of time and resources to do by hand

Women are not "listening to an app for medical advice" so much as using apps predictive algorithm. The app has access to much more data than we do individually and it can be extremely helpful for women with irregular or extreme periods.

Is it great opsec? No. Sometimes things trump (lol) opsec. I still will advise against anyone (man or woman) downloading and using these apps if they have alternatives. The apple health app seems like a privacy focused one, but I can't stress enough how none of that matters anyway. The courts and public opinion will be stacked against women in these positions, so any app data that can be used will be, and any lack of app data will just be used to make the case anyway. Keep as much data as you can as private as you can, regardless. People adding false data to the does nothing.

[-] AusatKeyboardPremi@lemmy.world 1 points 1 day ago

Thank you for providing detailed answers to my questions; which is what they are, just questions. I want to clarify, as much as your response suggests, I had not accused anyone or the apps of anything, nor was I belittling anyone for not knowing "paper exists". But I do get your frustrations which such comments, mine included.

I just want to better understand the appeal of these apps – all health tracking apps for that matter, and not just period trackers.

I still feel using such apps was a bad idea even before the onset of the current cultural and political climate, despite the convenience offered.

We have been consulting actual doctors long before these apps appeared on the scene, who provide personalised advice without the risks of large-scale data tracking, whether it is for something as simple as a prolonged cold or as complicated as delayed periods.

P.S. Yes, these are easily searchable questions, but then there is never a need to have any discussion on a forum as everything is a search away. I figured a more direct conversation would give me a clearer sense of the actual user experience, especially given how nuanced such issues can be.

[-] MountingSuspicion@reddthat.com 1 points 1 day ago

Thank you for not taking any offense to my frustrated tone, as it was indeed just that, frustration. Having questions and posting them here is completely understandable, and for what it's worth, I'd rather people ask than just never get an answer.

Though you are allowed to have your own opinion and come to your own conclusions, I think the fact you stated that you think using the apps was a bad idea even before now, and that doctors have been helping people long before apps, demonstrates that either I was not clear enough, or you were unable to appreciate the lived experience of people affected by their periods.

Doctors regularly misunderstand, misdiagnose, and outright ignore period related medical issues. I'm not sure where you live, but even in a country with the best healthcare in the world, it's literally impossible for doctors to provide the personalized information that apps can. I'm not saying that apps therefore must be used and are better than doctors, but I, a woman with periods, am telling you that my app has been more helpful than my doctor as far as managing my cycle goes. You don't have to believe me, or you can say that you don't think anything is worth the trade off in data for you as an individual, but people using these apps would obviously disagree. And not just because they don't know they're being tracked. We're all being tracked to a certain extent and we decide what we're willing to put up with in exchange. If you don't think you'd share your data for that convenience, fine, but people share data for other conveniences all the time. It's just extremely unfortunate that this data has now become so contentious.

[-] AusatKeyboardPremi@lemmy.world 1 points 18 hours ago

Thank you again for your nuanced response. I get that tracking health data can be useful, but I think the real value comes from sharing that data with a doctor who can make sense of it – not from relying on an app, at least not yet.

I am aware of how stressful and confusing things can get when managing something like periods. Multiple members of my family have faced these struggles, and while the healthcare system in our country is disorganised and far from perfect, we have always found that a good doctor’s expertise – though hard to come by – is irreplaceable.

As I mentioned earlier, I do see the value in tracking symptoms and vitals, but that value is unlocked when that data is used to inform a professional’s advice – not handed over to companies that profit from it, or worse, enable a greater malice.

In the end, it seems we are at an impasse between our opinions, but I believe the stakes are too high to rely on apps when lower-risk options – like consulting with doctors – have helped people navigate these struggles for generations. Again, I understand why apps can be appealing, but I think it’s important to consider what might be lost in the long term, especially when it comes to something as personal and vital as our health.

Perhaps, the energy should be put toward making good healthcare more accessible – which, I believe, is what these apps promised.

[-] MountingSuspicion@reddthat.com 2 points 18 hours ago

Not much to add here, as seemingly we agree on almost all real issues. Just wanted to acknowledge your response and wish you and yours well in all things.

[-] AusatKeyboardPremi@lemmy.world 2 points 18 hours ago

Yes, despite our long exchanges we do agree on the core issues. I appreciate your acknowledgement. Wishing you and yours well too.

Here's how I think about it:

I deleted Samsung Health from my phone not long after getting it. I started realizing that it's a VERY network intensive app, it wanted a lot of questionable permissions, etc. I fully see the purpose of a Health & Fitness app in the lives of everyday people, I think it can be of legitimate help for encouraging people to exercise and whatever, the health features of that app were definitely developed with the same attitude a hunter baits a trap. It was what they begrudgingly did to get me to step in it.

I ditched Samsung Health because I had visions of them selling that data to my health insurance provider who would then use it as an excuse to make my coverage worse and therefore more profitable. So I'm pretty sure if I was a jew in 1930's Germany I'd delete Synogogr from my phone.

Elsewhere, I've seen women tweet or Tumbl or whatever about refusing to discuss their periods with their doctors. "When was yoru last period?" "It's regular, that's all you need to know." Where's that energy when it's a cell phone app?

[-] MountingSuspicion@reddthat.com 1 points 1 day ago

I think it was probably a good move to stop using Samsung health. Hopefully you're getting the features you need elsewhere or are staying healthy without it.

I think you are seeing some of that energy as it relates to these apps, hence the OOP, but for practicality sake, and maybe out of naivety, most women are not/don't need to be as concerned as Jews in 1930s Germany. Most of the harm that will be done will be in removing access to future care and likely mainly to start in red states. If apps become a huge source of the issue, I think you'll see a larger shift, but I imagine most of those cases would not need app data as a main source of evidence. You'll see women dying of miscarriages more and more. And abortion will be more difficult to access, but I think there would have to be more cases where period app data was specifically used to convict before much changes. I think it's difficult to accurately convey how important accurate tracking/predictions can be for some people, and how unwilling they would be to give that up. Especially if they are not in a situation where they are likely to get pregnant. The difference between telling your doctor your period is regular vs using an app is that your doctor is just not capable of giving up to the minute personalized information the way an app can. If people's doctors were personally knocking on their door reminding them to take their medication twice a day and then giving them reminders that Wednesdays their symptoms are worse so maybe don't plan a full body gym workout, they'd probably be less likely to withhold the information from their doctor, so I don't really see the two as being directly comparable. Though, I generally agree with the sentiment that it's bad idea to trust anyone with your data, especially health data or data that can be used to support a criminal case against you.

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[-] vordalack@lemm.ee 1 points 1 day ago* (last edited 1 day ago)

Finally, now these zesty, emotional, chuds have an excuse for their emotional behavior.

[-] NatakuNox@lemmy.world 15 points 2 days ago

I've been using it to track my poops.

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[-] OldManBOMBIN@lemmy.world 68 points 3 days ago
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[-] capital@lemmy.world 10 points 2 days ago

iOS has a first party health app that has menstrual tracking. I’m under the impression Apple takes data security seriously. If you don’t, self hosted is probably best.

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this post was submitted on 13 Nov 2024
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