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Pony Rule
(lemmy.world)
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this post was submitted on 15 Jul 2024
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Chronic Illness
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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
founded 4 months ago
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I haven't had a migraine free day in at least 4 years. I have tried every migraine drug on the market. The only thing that works for me is Midrin. Which was discontinued in 2009. Good thing you can get it at a compounding pharmacy. Oh wait! You can't anymore. You can't get it anywhere. This last bottle on my desk is evidently one of the last in existence. And it's the only thing that works. So no, I won't just be taking the headache medicine. I've got to save it for when I have to function, not for when I want to feel better.
Have you seen this article? It gives you the component breakdown so you can try to find the 3 drugs that make it up, or you can try the alternative that has 2/3 of the drugs that is still on the market.
Hmm, Wikipedia tells me:
https://en.wikipedia.org/wiki/Amidrine
Yeah, I know (I checked it before I posted on the off chance I'd find some good news). That page hasn't been updated in a while and I was only told there would be no more available back in April
Ah ok, that's unfortunate...