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Chronic Illness
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for healthy people to share their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
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Respect the Group’s Purpose. It’s a support forum for people with chronic illness to vent and share and talk together. It’s not a place for healthy people to come and give their opinions.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
My ex's doctor refused to refer her to a specialist because he didn't think she had the condition they specialized in. Until I went along one time and just asked "what makes you rule it out?"
At that point, he admitted knowing nothing about the condition and said he'd do some research. Which he did do and promptly referred her to the specialist because it matched her weird symptoms very well and she's since been diagnosed with two variants of it (one from each parent).
And the sad part is that doctor was her better newer doctor after getting rid of one whose advice would have killed her because he didn't realize the birth control he wanted her to finish the course of was causing her organs to shut down because he didn't bother with the follow up blood tests he was supposed to do or take her severe symptoms seriously.