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me_irl
(lemmy.blahaj.zone)
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this post was submitted on 16 Jul 2025
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Chronic Illness
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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for healthy people to share their opinions on disability.
Rules
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Be excellent to each other
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Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
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No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
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No denialism or minimisation This applies challenges faced by chronically ill people.
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No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
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Respect the Group’s Purpose. It’s a support forum for people with chronic illness to vent and share and talk together. It’s not a place for healthy people to come and give their opinions.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
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I have a tongue issues which five different doctors have decided is geographic tongue, and told me it will go away “in a couple of weeks”. The last two times I heavily prefaced adding “Before I get into it, it’s OK to say you don’t know, but don’t tell me it will go away in a couple of weeks because it’s been over ten years.” Both times as soon as they saw my tongue they cut me off with a “it will go away in a couple of weeks” and refused to discuss it further.
My ex's doctor refused to refer her to a specialist because he didn't think she had the condition they specialized in. Until I went along one time and just asked "what makes you rule it out?"
At that point, he admitted knowing nothing about the condition and said he'd do some research. Which he did do and promptly referred her to the specialist because it matched her weird symptoms very well and she's since been diagnosed with two variants of it (one from each parent).
And the sad part is that doctor was her better newer doctor after getting rid of one whose advice would have killed her because he didn't realize the birth control he wanted her to finish the course of was causing her organs to shut down because he didn't bother with the follow up blood tests he was supposed to do or take her severe symptoms seriously.
😭…
average medical appointment.
You know what? There's this thing called AI...and it somehow cares more than an actual human.
The fuck we need meatbags for anymore?
And medical diagnosis is one of the areas very well suited to automation, the only thing is answering some of the binary questions in the flowchart involve giving and interpreting complex tests. But a machine could decide what tests need to be done and would probably do a better job than a lot of doctors out there as long as they don't add a bunch of conclusions like "patient is probably just looking for opiates" or "pain can't be that bad if the patient is still able to function and talk about it" or "it's never rare condition".
Then the human doctors can be left to do the interesting work or find a new career if all they wanted to do is say whatever words will make the patient go away (and pay their bill).
People died because of their apathy. Deserved!
What you're describing doesn't even require AI. Skip that unreliability and just code a flow chart questionnaire.
Yeah, it wouldn't need to be an llm or nn. But a flow chart questionnaire that can dynamically add new nodes can be considered a form of machine learning.
That's usually related to vitamin deficiencies, have you been screened for that at all? Doctors tend to skip over vitamin deficiencies
I’ll ask the next one!
I'm sorry, are you saying they haven't brought it up before? Maybe do some of your own research and try supplementing the vitamins listed or eating foods with thise vitamins in them. My word, it's like a classic symptom of B3 deficiency among others, I'm so sorry no one has told you. It's literally the first thing they are supposed to give you, are vitamins, to treat that and see how it responds.