[-] spainball@lemmy.world 4 points 8 months ago

I know I have not been fully empathetic at all times either, especially before we got the diagnoses. She got ADHD diagnosed about 2 years ago and autism very recently, so its been a wild ride trying to learn everything and then everything again. The PDA part definitely put a twist to it as they are diagnoses that collide in many ways from what I understand. Thank you

[-] spainball@lemmy.world 3 points 8 months ago

I am very grateful for all insight given here. While its not a silver bullet, its another perspective we can take into consideration when trying to help her

[-] spainball@lemmy.world 3 points 8 months ago

I have no idea to be honest. Pivot I guess, just not sure where to

[-] spainball@lemmy.world 4 points 8 months ago

I greatly appreciate every insight and idea I have gotten here. Im neurotypical myself so all I can do is try my best at understanding, and reach out to places like this to try and get a different perspective.

While we understand that a school change is difficult (for any child) and the things you mentioned about her previous experiences with meds, we have a hard time finding the connection. It might sound like a very obvious connection, but we have tried so many things to figure it out that the conclusion came pretty much from exclusion. So when you say there might be one still I appreciate that insight, we need to rethink that part.

[-] spainball@lemmy.world 4 points 8 months ago

We have tried trading it for things she wants and tried giving her some kind of choice in for example when she wants to take the meds or how, to give her a sense of ownership of the situation. We have told her it is ultimately her choice if she wants to take them or not, hoping she would feel the difference herself and choose to start again.

[-] spainball@lemmy.world 3 points 8 months ago

We definitely see the connection and think we have a pretty good idea why she is not taking the meds. A big part of the problem is that we have been told by school and doctors for a couple of years now what to do, and we have done as instructed because they are supposed to be professionals. And the result is like you described, she does not trust us fully anymore.

Im certain she feels better from the meds, but perhaps not directly. But all the fights and irritation that can be avoided has so many side effects. And we saw a very different person back when she took them, happy and at least more content. Its a bit of a catch-22 at this point and I just wish there was something we could do.

[-] spainball@lemmy.world 3 points 8 months ago

My wife has taken facebook route and are in several groups about autism and ADHD, but we struggle to find anywhere that is specific to PDA and ADHD (problematic duo as much of their traits go against each other). We have tried to apply whatever trickery we get from the groups we are in (and of course all the doctors we are speaking to every week) but to no avail. We have gotten lots of good advice on other parts of this though, so it has not been in vein

[-] spainball@lemmy.world 8 points 8 months ago

We have gone through a slew of different meds and delivery systems that she outright rejected because of nasty taste or hard to ingest. But these ones were never an issue, especially since we introduced pill-covers with good taste. The only reason we are getting our of her is that if she takes them, we (the parents) win and ergo, she looses. We have tried with every way we can think of to explain what they do and why they are good, and why nobody looses and everyone wins. And sometimes it feels like we get through, but when its time to actually take them its like there is a muscular block that just wont go through with it and we end up in a several hours long, one sided, war

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submitted 8 months ago by spainball@lemmy.world to c/autism@lemmy.world

I have a 10 yo daughter with PDA autism (and ADHD) who decided to refuse her medication in early January. We have noticed a big difference from when she took them so we really want her to get back on them, but nothing we have tried works. Anyone with some experience they want to share? We are grasping for straws at this point. Help

[-] spainball@lemmy.world 3 points 1 year ago* (last edited 1 year ago)

A not very convenient way in the heat of battle is to use https://warframe.fandom.com/wiki/Detect_Vulnerability on Helios. But you could do it once for science and then you know

Also Banshees Sonar skill

[-] spainball@lemmy.world 8 points 1 year ago

Yeah it's in settings

[-] spainball@lemmy.world 5 points 1 year ago

Excaliber Umbra has better stats and umbra polarities, and since you have the mods I guess you have the frame (was a while since I did that, but I think they come together?) Also if you don't have it already, Healing Return or Life Strike on your melee could help some. And what the others said

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spainball

joined 1 year ago