A new open-source resource for ME/CFS research summaries (old.reddit.com)

submitted 1 week ago by bjoern_tantau@swg-empire.de to c/myalgicencephalomyelitis

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cross-posted from: https://lemmit.online/post/6598249

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The original was posted on /r/cfs by /u/dsnyder42 on 2025-08-17 16:06:35+00:00.

Hello everyone,

I've created a new, open-source GitHub repository to help people navigate the world of ME/CFS research.

The repository, "ME-CFS-Research-Summaries," contains plain-language summaries of recent and important scientific papers on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. The goal is to make this complex information more accessible to patients, caregivers, and anyone else interested in staying up-to-date on the latest findings.

You can find the repository here: https://github.com/Hanneseh/ME-CFS-Research-Summaries/tree/main

Feel free to check it out, use the summaries, and contribute if you have any expertise!

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[-] FundMECFS@lemmy.dbzer0.com 2 points 1 week ago

Reading it. It’s a shame because the idea is good. But the LLM they use seems to somewhat uncritical. So it often takes up whatever researchers claim without properly hedging and verifying methodology…

[-] FundMECFS@lemmy.dbzer0.com 2 points 1 week ago

Redlib link: https://redlib.r4fo.com/r/cfs/comments/1msuupm/a_new_opensource_resource_for_mecfs_research/

this post was submitted on 18 Aug 2025

5 points (100.0% liked)

ME/CFS

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A community for people with Myalgic Encephalomyelitis (ME), sometimes called Chronic Fatigue Syndrome (CFS). ME

Since Lemmy is small, this community also serves as a hub for common comorbidities of ME/CFS. Long COVID (Post COVID), POTS (Postural Orthostatic Tachycardia Syndrome), OI (orthostatic intolerance), MCAS (mast cell activation syndrome), and more!

For those who want an even more general community, check out !chronicillness@lemmy.world

Also please DM me I need to add some mods!

Rules: Instance Rules, No Ableism + No quackery or denialism. Empathy first, is a must to participate. No unsolicited advice.

founded 11 months ago

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