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Physics Girl Long Covid and ME/CFS Livestream [Fundraiser + Interviews] (m.youtube.com)

submitted 4 months ago by mecfs@lemmy.world to c/videos@lemmy.world

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[-] mecfs@lemmy.world 24 points 4 months ago

100k reached! Thanks to everyone who donated for putting hope into our lives ❤️

[-] PagPag@lemmy.world 6 points 4 months ago

Just no.

[-] mecfs@lemmy.world 42 points 4 months ago

POV you have absolutely no empathy

[-] PagPag@lemmy.world 3 points 4 months ago

Just no.

[-] CaptainPedantic@lemmy.world 12 points 4 months ago

Buddy, I just shit your pants.

[-] PagPag@lemmy.world 1 points 4 months ago

Lmao

[-] SaltyLemon66@sh.itjust.works 5 points 4 months ago* (last edited 4 months ago)

[removed by mod]

[-] mecfs@lemmy.world 41 points 4 months ago* (last edited 4 months ago)

ME/CFS has a 5% recovery rate. I am as severe as Diana for a decade for example.

Please don’t say things like that. It insinuates that our lives are not worth living, when that choice is very personal, and having someone else say that can be very heartbreaking when you’re just living the best you can.

Imagine you are ill with something and someone says “you should probably go kill yourself” or “If I were in your shoes I would kill myself”….

[-] Ghostalmedia@lemmy.world 14 points 4 months ago

Apologies for the jerks in this thread. I'm yanking those comments now since that behavior is against community rules.

As the downvotes indicate, these people are not a representation of the rest of this community's views.

[-] mecfs@lemmy.world 7 points 4 months ago

thanks. appreciate it ❤️

[-] jol@discuss.tchncs.de 13 points 4 months ago

People seem to slowly get better, and there are still medical trials going on for different medicine that has varying levels of effect. A friend was on a trial for a sort of heart disease medicine that has graduated to the next phase.

I can't imagine the stress on both their lives, specially in a country with terrible healthcare like America.

[-] dingus@lemmy.world 3 points 4 months ago

I hope this is not inappropriate for me to say, but in currently in the process of trying to get over COVID and this is scaring me.

[-] TheFonz@lemmy.world 2 points 4 months ago

Is. This a scam??

[-] Ghostalmedia@lemmy.world 14 points 4 months ago

It is not.

[-] TheFonz@lemmy.world 3 points 4 months ago

Ok. I just wasn't sure. I guess there's always an element of risk involved in these things.

[-] Ghostalmedia@lemmy.world 9 points 4 months ago

This person is a fairly prominent science YouTuber. She’s legit.

this post was submitted on 06 Jul 2024

102 points (100.0% liked)

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