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this post was submitted on 04 Jan 2024
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Yeah my rheumatologist did mention that to me but he said it takes years and years to start to form and is easy to revert. He just said to get eyes checked every year
It is most certainly not easy to revert. I was on it for 15 years and now have permanent, irreversible damage to my macular. I also can’t take hydroxychloroquine at all anymore because I will go blind.
But my doctors messed up and didn’t checked my eyes for over a decade. Once the usual optician spotted it, it was too late. If you see an ophthalmologist every year, they should spot any issue before it’s too late.
Yeah sorry that's what I meant, catching it before it's too late. I'm really really sorry you're experiencing this, that is terrible.
Thanks. I was angry for ages, now it’s just another lupus gift - nothing to be done except get on with it. Wishing you many more good days than bad!
Same goes to you!