I think we should describe it as Mitochondrial Energy (ME) disease when talking about ME for public education and outreach. (self.myalgicencephalomyelitis)

submitted 3 weeks ago by anothercatgirl to c/myalgicencephalomyelitis

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Everyone knows that the mitochondria is the powerhouse of the cell. And we know that ME significantly affects the mitochondria. So by unofficially renaming it to Mitochondrial Energy (ME) disease, it helps unfamiliar readers to understand the primary mechanism at a glance, without having to research it more. Easier public understanding can lead to better public image and more donors.

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[-] bjoern_tantau@swg-empire.de 2 points 3 weeks ago

I feel like however we call it people won't get it either way.

My wife was talking to potential caretakers the other day and stressed that I probably couldn't handle more than 10 minutes a week, possibly only every two weeks. And they send us a proposal for two days with an hour each per week.

this post was submitted on 03 Mar 2025

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ME/CFS

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