christ, i'm sorry you have to deal with this. they really find every way to fuck over the chronically ill/disabled. hopefully you get everything straightened out. is there an online chronic illness community for your country? they can probably give you the name of a decent doctor, if so.

Oh and I'm waiting on a dna test result to see if the issue is actually genetical (I only get symptomatic treatment, no source diagnose yet) and it was supposed to arrive last week but it didn't and the laboratory isn't responding. I had to take two days sick which I used my holidays for despite starting a new job last month. The doctor expressed my case is rare which I know but he didn't ask me any questions, just told me he cannot do anything and has to forward me. I don't understand why they can forward you to a specific clinic if said clinic may no longer accept new patients.

You can try bribing a pharmacist if the country is poor enough, just ask if there is the option to pay a fee for not having a script

I'm going for the correct forward tomorrow but I messaged many specialists already and they said they can no longer accept new patients. I hope I find someone. :(