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Was bed bound with post covid for 2-1\2 years now I have a somewhat normal life. (self.cfs)
submitted 1 year ago by StoneGender to c/cfs@feddit.de
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So the biggest thing I had to figured out was all my allegeries. Fragrance is the biggest one, its in everything and I can't be around it at all. It took 6 months to get rid of all of it and is a constant effort to keep out of my living space. I have met multiple other people who has this same allergy. Cutting gluten out of my diet also helped a lot. HEPA 13 air purifiers are a must. And these are the meds I'm currently on: Gabapentin 300mgx3 daily ALA 300mgx3 daily Tumeric 500mgx3 daily Benadryl liquid gels 25mgx3 daily Loratadine 10mgx1 daily Azelastine HCI 205.5 mcg spray 4 times daily Probotics 1x daily Bio-identical hormones to correct hormone imbalance I smoke tar free cigarettes for brain fog and nausea Microdose of psilocybin 400mg of fungal material 4 times a week for migraines and brain fog. Let me know if you have any questions. I know how awful it feels to have this with no end in sight.

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[-] RobotToaster@mander.xyz 1 points 1 year ago

How did you figure out your allergies/intolerances? I've looked at testing but most look scammy.

[-] StoneGender 1 points 1 year ago* (last edited 1 year ago)

By way of elimination, sorta like the fodmap diet but for environment factors. Symptoms that increase for everyone I have talked to are brain fog, neuropathy, lightheadedness. But yeah just remove the thing from your environment for some months then reintroduce it to see if you get worst. I highly suggest fragrance as a start as there are research studies showing it is common in people with post viral illnesses. You can also go an allergist and get a spot test done but it may not be conclusive.

this post was submitted on 19 Jan 2024
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Chronic Fatigue Syndrome / Myalgic Encephalomyelitis

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