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Lichen sclerosus nightmare (NSFW) (slrpnk.net)
submitted 1 week ago by wildflowertea@slrpnk.net to c/womensstuff@piefed.blahaj.zone
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I've had candidiasis-like symptoms for over a year. Creams to address it calm them but as soon as I stop, the whole party starts again.

Finally got a diagnosis: lichen sclerosus.

That hasn't provided any relief though, because I've been on treatment since August and I am not even close to a point where I can say I am stable – even following the treatment to the T, and all the advice about hygiene, clothes, dilation exercises, etc.

My libido is in shambles and I dread looking or touching there. Pain, burning, narrowing of both vagina and anus, blood, cracked flesh... How am I supposed to live with this?

I am planning on getting pelvic floor therapy, but cannot afford the expense right now so it'll have to wait a few months.

Is there anyone with this in the room who can provide a semblant of hope...? How long did it take for you to find balance? Any tricks?

Digital hugs are more than welcome too...

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[-] wildflowertea@slrpnk.net 2 points 2 days ago

My skin breaks very easily, so I got the prescription for the oestrogen cream to help strengthen it. The moisturiser is helping enormously with the itching too. Got two recommended and both are keeping me as sane as this whole thing allows...

I thought once a week was too little too! I've gone undiagnosed for a year so I expected it'd take a longer treatment to stabilise the LS, but my gynae set me up on a four-week one where I gradually scale down from twice a day to twice a week, after having tried once a week and finding out it was too little.

I think what you mention about the dermatologist could be key here. I won't say my gynae doesn't have a clue what she's doing, but I think she may be underestimating my current situation...

And you are completely right. It is an ointment and not a cream!

Thank you again. I'm trying to stay positive and be kind to myself, but it is hard when your immune system is constantly throwing curveballs at you.

this post was submitted on 08 Oct 2025
33 points (100.0% liked)

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