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submitted 21 hours ago* (last edited 21 hours ago) by FundMECFSResearch to c/goodoffmychest@lemmy.world

I got a COVID infection a while ago that permanently disabled me pretty bad. Bedridden, unable to move much, etc.

The thing that really helped me was relaxing and listening to music. That’s what I spent my days doing as I couldn’t do much else. I became a real music nerd and just loved the bliss of hearing music.

A little later (two years). I got another COVID infection — I was taking very strong precautions, and couldn’t see anyone. It turns out I got it from my doctor. Anyways, this infection caused some brain damage which has caused me to mostly loose the ability to hear. And now I’m still mostly motionless alone in bed, but I haven’t even got the comfort of sound or music. Just a mostly silent (tinnitus filled) world.

I’m so scared of getting covid again. But mostly I miss the world and my old life. Being stuck alone in bed with only the internet for company sucks. People tend to be arseholes online. I can’t help but feel I got “natural selectioned”. Me and my wife were planning on having kids soon. Now I barely see her and I’m going to slowly die in a nursing home. There are specific genetic vulnerabilities to illnesses, and natural selection works with them (see what Europeans coming to America did). And I got fucked here. COVID was my end.

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[-] LouNeko@lemmy.world 12 points 6 hours ago

It absolutely sucks that this happened to you, I would literary not wish your fate on anybody in the world. I won't use this to tell my own sob story, but have you tried getting into video games? Most have accessibility features. Get "Factorio" it basically runs on a potato and you will unironicaly forget what the sun looks like. Sound is not important either.

[-] EightLeggedFreak@lemmy.world 4 points 4 hours ago

Space Age is right around the corner. I'll emerge after winter.

[-] LouNeko@lemmy.world 2 points 4 hours ago

Just in time for the Project Zomboid B42 update, and its back to the cave.

[-] Rentlar@lemmy.ca 31 points 19 hours ago

I'm sorry for your loss of the lifestyle you cherished. Just a random thought: If hearing aids won't work for you, you could try feeling music instead of hearing it, while it won't be the same, sensing the underlying beat could help evoke your imagination again and possibly help you rediscover your favourite tunes and new ones.

Definitely the internet is a mixed bag, with lots of doom and gloom, and more cynical and controversial takes elevated to the top. There are also corners of the internet that are positive, definitely go visit them more. Reading fiction and learning from non-fiction literature may be more of a personal comfort than the internet may be.

[-] RagnarokOnline@programming.dev 43 points 21 hours ago

You have had a major loss.

I’m glad you are still with us to share this story. You wrote in such a clear and eloquent way; it’s clear you cared very much about us that you took the time to communicate effectively.

My father is currently in a nursing home (just for normal end of life stuff). He was a deadbeat most of my life and treated his health really poorly.

It’s cruel that he was able to live the way he did and live for so long, while you’ve done nothing to “earn” your maladies; yet, you’re both in a similar situation (except no one wants to go see him, because of him being a PoS for most of his life). You don’t seem like a deadbeat or a PoS, so as far as I’m concerned, you win.

I hope things turn around completely for you and you’re restored back to full health.

[-] inb4_FoundTheVegan@lemmy.world 16 points 20 hours ago

Nothing but feels for you friend, that's rough and I can't imagine what it must be like. I too am coming to grips with my own disabilities, a spine injury putting me into a wheelchair. Losing a sense on top of everything else you mentioned is horrific.

If I may be so bold, I found a lot of peace, zen and understanding in the book "What doesn't kill you". I recently finished and it was incredibly gratifying to read about how other people struggle with life changing medical events.

[-] EfficientEffigy@lemmy.world 10 points 20 hours ago

Knowing anything about it I have to ask.... would bone conducting headphones work?

[-] Dubiousx99@lemmy.world 18 points 20 hours ago

I would suspect they would not work. The damage from Covid appears to be neurological and bone conducting headphones only bypass the mechanical components of the ear.

[-] boatswain@infosec.pub 9 points 20 hours ago

There are corners of the Internet still out there where you can find some really great people to hang out with; like 70% of my friend group is people who all meet through online games. We get together in person weekly or so now but still regularly play games together and hang out. I know it's no replacement for all you've lost, but maybe playing games with friends could be some comfort? Or some other hobby or interest group that can be engaged with online?

[-] dohpaz42@lemmy.world 9 points 20 hours ago

I don’t know your circumstances, or what you’ve tried or can try, but you could look into cochlea implants.

And while nothing about this is ideal or easy, I hope you are able to find your way to heal and rebuild from this trauma. Grieve. You’ve lost a lot. But please don’t give up on yourself (or your wife) quite yet.

[-] phdepressed@sh.itjust.works 10 points 18 hours ago

Cochlear implants don't fix brain damage.

[-] Gradually_Adjusting@lemmy.world 6 points 20 hours ago

That's just rotten luck. You feel like your life has ended, and I can see why. But it hasn't. There's more strength in you than you know, even still.

If you have a favorite song, have you tried going to a lyrics site and imagining the song as you read? It's not as good as the real thing, but maybe it's a way to keep those songs alive in your heart.

[-] glizzyguzzler 3 points 20 hours ago

Fucking sucks but it was impactful to read your story. I’m guessing you’re properly deep in the supplement community, but if you want to chat about them lmk

[-] FlihpFlorp@lemm.ee 2 points 20 hours ago

I’m so sorry to hear that. I don’t really have any advice but you’ll be in my thoughts OP, I hope you get better

this post was submitted on 18 Sep 2024
201 points (100.0% liked)

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