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this post was submitted on 10 Dec 2023
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PSA: you can request deletion of your 23andMe account. It won’t do anything for this past hack, but it’ll at least prevent your data from being included in future hacks (assuming they actually completely delete your data like they’re supposed to).
it's almost always a soft delete, that is, change active field in database to false, coupled with their terms of service that state vaguely how they start the deletion process which could take months and how they may still keep certain data for legitimate purposes.
And this is why I wish we adopted GDPR more... if they are compliant, then they have to remove all data held when requested. Too bad the US will never care that much to respect individuals' data like that.
Exactly. I made a GDPR request for deletion. They can get in big trouble if they are soft deleting.
Have they ever been audited?
How does the legal authority work with GDPR if the company's physical and financial operations are entirely within the US? Would the GDPR even be allowed to audit them without their consent?
No idea if they’ve been audited. GDPR doesn’t require it. My understanding is that American companies doing any business or having any users in the EU need to be GDPR compliant for those users. I don’t think that’s been challenged in any courts yet.
They didn't.
They just made it so you couldn't see it anymore.