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A DNA-testing firm appears to have ceased trading - without telling its customers what has happened to the highly sensitive data they shared with it.

Atlas Biomed, which has offices in London, offered to provide insights into people's genetic make up as well as their predisposition to certain illnesses.

However, users are no longer able to access their personalised reports online and the company has not responded to the BBC's requests for comment.

Customers of the firm describe the situation as "very alarming" and say they want answers about what has happened to their "most personal information".

The apparent disappearance of Atlas Biomed is a mystery - but it appears to have links with Russia.

Prof Carissa Veliz - author of Privacy is Power - points out that DNA is arguably the most valuable personal data you have. It is uniquely yours, you can’t change it, and it reveals your – and by extension, your family’s - biological strengths and weaknesses.

Biometric data is given special protection under the UK’s version of GDPR, the data protection law.

"When you give your data to a company you are completely at their mercy and you have to be able to trust them," Prof Veliz said.

"We shouldn’t have to wait until something happens."

top 18 comments
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[-] CosmoNova@lemmy.world 83 points 1 month ago

It's almost as if every single data expert and privacy advocate was right. How curious!

[-] jdw@links.mayhem.academy 48 points 1 month ago

We need a federated DNA service.

[-] catloaf@lemm.ee 27 points 1 month ago* (last edited 1 month ago)

And how do you suggest we federate our DNA to each other?

[-] Entropywins@lemmy.world 39 points 1 month ago
[-] popekingjoe@lemmy.world 14 points 1 month ago

Just a series of big ol' orgies.

[-] pastermil@sh.itjust.works 13 points 1 month ago

Just like what our founding fathers had envisioned.

[-] skulblaka@sh.itjust.works 4 points 1 month ago

I don't know about the rest of them, but Ben Franklin sure envisioned some orgies. Attended a few of 'em too.

[-] ivanafterall@lemmy.world 3 points 1 month ago

They didn't call it the Constitutional Cumvention for nothing.

[-] DancingBear@midwest.social 9 points 1 month ago

Fondling fathers

[-] jdw@links.mayhem.academy 2 points 1 month ago

Federated DNA data storage service. My bad.

[-] 9tr6gyp3@lemmy.world 17 points 1 month ago
[-] 667@lemmy.radio 22 points 1 month ago

With AI generated crypto rewards

[-] circuscritic@lemmy.ca 5 points 1 month ago
[-] Eezyville@sh.itjust.works 23 points 1 month ago

The plot of Gattaca is getting closer and closer to reality.

[-] DoucheBagMcSwag@lemmy.dbzer0.com 16 points 1 month ago

It was 1,000% sold without authorization

[-] Confused_Emus@lemmy.dbzer0.com 16 points 1 month ago

"most personal information"

And they just handed it over to some company.

[-] MonkderVierte@lemmy.ml 11 points 1 month ago* (last edited 1 month ago)
  1. Your browser has a "save" functionality, use it
  2. You can't trust companies with such data.
this post was submitted on 09 Nov 2024
348 points (100.0% liked)

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